Tribute to the Work of Mothers

Tomorrow is Mother’s Day – and it’s got me thinking. For starters, how blessed I am to have my mother as my Mom (same goes for Dad)! And in the context of this blog being about work-life, I’m thinking specifically about the work mothers do.  It’s not a five-day /40 hr work week. It’s 24/7 and life-long. And whether ‘Mom’ also works outside of the home or not, this job of ‘motherhood’  is still full time.

Too often the work of mothers gets marginalized. Moms don’t get annual performance reviews, bonus’s or vacation pay. They don’t get ’employee of the month’ recognition. Well, they get Mother’s Day. Drum rolls puleeeze!

In the spirit of Mother’s Day, I want to acknowledge, celebrate and dedicate this post to the work of mothers, particularly my own mother for all’s she’s done and who’s she’s been to me all these years.  And,  I also want to single out another particular Mom — one who has had a tremendously challenging path in her journey of parenthood.

 Marcy and Jake

(Marcy White with her son Jacob)

My friend Marcy White (with her husband Andrew Trossman) have a son, Jacob, who was born with a severe and very rare handicap. When he was born, no one knew what was wrong – but it was obvious, something was very, very seriously wrong. Eventually, at age 10 months, Jacob was diagnosed with Pelizaeus-Merzbacher Disease (PMD) – a very rare degenerative neurological disorder. If you’ve seen the movie Lorenzo’s Oil, it is within the same family but PMD is distinct and without any cure at this point. Anyone that meets Jacob immediately falls in love with him. He is smart, loving, adorable. But his disease prevents him from talking, walking, eating (he is fed with a tube) — and he suffers from so much more physical difficulty. 

Marcy was a very successful career woman and had always had full intentions of being a mom AND  pursuing her career.  But when Jacob came – as blessed as they feel to have him in their life despite his challenges — Marcy’s “work” took on a whole new meaning. She switched gears and has since unceasingly focused on trying to make life better for Jacob. Marcy and Andrew have since had two (delicious, adorable!) twins…..so needless to say, Marcy’s day job, night job — and anything in between is all about family. She has her work cut out for her.

A tireless advocate and loving mother, Marcy works non-stop to raise  awareness and also try to raise some funds for research to find a cure for Jacob and kids like him. Because it’s so rare a disease, there isn’t much awareness nor any built-in support like some of the other causes out there. They are on their own — and the work never ends. But they (Marcy and Andrew) are on a mission and have purpose in their work…..how’s that for ‘meaningful work’?

MUST READ: Over the years, Marcy has found her strength, courage — and her voice. She tells Jacob’s story in articles, television, and other media.

Their story has been featured on ABC’s Nightline, Global TV, CTV — to name just a few Just this week Marcy wrote an article that was featured on EParents.com  This article is a must-read.  Her story told in her voice will move you beyond any words I can write here. You can also see the ABC Nightline report and all other media at the website (www.curepmd.com) .

REQUEST: I am inviting (really ‘requesting’ 🙂 you to take a moment to read Marcy’s article — and perhaps some of the others on their site. Help me acknowledge the work of mothers and in particular the journey of Marcy, Jacob and the Trossman family. Most importantly, by reading Marcy’s/Jacob’s story, you will support her efforts by raising awareness of PMD….and that just may help advance the search for a cure and/or ways to help Jacob live a better life. 

Happy Mother’s Day and to a TGIM Work-life to you and all the mothers of the world!

Eileen

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2 Responses to “Tribute to the Work of Mothers”

  1. Donna Papacosta Says:

    OK, OK, I’m going to read them right now!

  2. Eileen Chadnick Says:

    Donna, thank you! I didn’t realize that I hadn’t acknowledged this note. I appreciate you taking the time. One person at a time…!

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